We got a call yesterday morning that Alaina has necrotizing enterocolitis (aka NEC). Basically, NEC is a very serious gastrointestinal disease where infection or inflammation can cause damage to, or even the destruction of, the intestines. She's in critical condition and we are hoping and praying that her intestines won't perforate which would require surgery. She's on antibiotics to deal with any infections (we found out today that she has an E. Coli infection but we're hoping the antibiotics will take care of it) and the doctors have her intubated so she doesn't have to work as hard to breathe. She has X-rays taken every 4-6 hours to make sure there are no perforations in her intestines and surgeons are on stand by just in case. The good news is that even though Alaina is in critical condition, she's been stable since yesterday but all we can do now is take it hour by hour.
As if that wasn't enough, Gabrielle starting throwing up yesterday too so the doctors stopped her feeds and started X-raying her to make sure she hasn't contracted NEC as well. So far, her X-rays have been clear but she's being fed via IV now just to be safe. The infection she had earlier this week seems to be under control and we're hoping she'll stay NEC-free and will be back to getting milk very soon.
So that's the latest. I hope this doesn't sound rude, but please don't call to check in on the girls -- we're spending a lot of time with them in the NICU and when we're home, the last thing we want to hear is the phone ringing because it could be the NICU with bad news -- and please don't be offended if we don't return e-mails right away. We'll post updates here when we can and we thank you in advance for any prayers and good thoughts you can spare for Alaina and Gabrielle.
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7 comments:
Oh Danielle...we continue to pray and have you guys in our thoughts. Do not worry about answering emails or phone calls(I emailed you a couple of days ago and won't be offended one bit!). I am sure eveyone understands so it's not rude at all.
Just know that there is a lot of people out there constantly thinking about the girls (as well as about you guys!) and sending lots of good vibes and prayers.
Hugs,
Andreina
We are all pulling for the girls. We are here if you need us.
Sending so much love and lots of prayers your way!!! Don't worry about being in touch, everyone understands and just wants you both to rest and have energy for each other and for the girls!! You are so very loved! xoxo Carrie
Nine years ago our very best friends faced the news you had today - and then it got worse. The bowel did burst.
Today Jordan is a happy, healthy, intelligent, active third grader. She takes gymnastic lessons, plays with her hamster, has friends over for sleepovers.
In these past nine years medical science has gotten better! I know your girls feel your love and appreciate your strength. They have Jordan's success and our prayers too.
(ref: Balancing Act)
Sending love, prayers and all the positive energy I can!
Judi Zimmer
thinking of all of you and hoping/knowing that everything will be ok and the girls will continue fighting! love you!
D - you, Jan and the girls continue to be in our thoughts all the time. We are sending tons of love your way always.
xoxo - Jill, Scott & Addison
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